Thank you for considering taking part in this research study.

Please be aware that we have now reached maximum capacity for people with Parkinson's who have been diagnosed at age 50 or older.

We still welcome registrations for the following groups:

  • People with Parkinson's diagnosed at age below 50
  • Care partners
  • Clinicians who look after people with Parkinson's

Study purpose: We would like to understand what you think is important for people with Parkinson’s and their families to know before undergoing genetic testing with the aim of identifying consensus on key items that are important for genetic counselling conversations.

Who can take part: You have been invited to take part because you are living in the UK and either have Parkinson’s, are the care partner of someone with Parkinson’s or are a clinician looking after people with Parkinson’s.

What is involved: This is a Delphi study consisting of up to 5 surveys over the course of the next 10 months. It is really important that you stay on board and are committed to answer each survey as the study involves feedback taking into account feedback from other study participants.

A brief video explaining the study can be found here: https://www.youtube.com/watch?v=DdcGq2luKNM&t=6s

For more information on the study and how we will handle your data, please read the participant information sheet: https://static.onlinesurveys.ac.uk/media/account/64/survey/990262/question/Appendix_5_Participant_informa_ti3qcj5.docx

More information on how your data is being processed can be found here: https://www.plymouth.ac.uk/research/governance/research-participant-privacy-notice

Click next when you're ready to move on to the consent page.